visitors

Cosima is getting adjusted to being out of the hospital. Going from a very structured environment and having most of your day mapped out to suddenly not having the schedule in place has been a bit of an adjustment.

It is going very well with her at Thelma's house and she is still getting organized and setting up her routine. They are doing well together and enjoying each other's company.

Today she spent quite a bit of time on the stationary bike and is working to continue her therapy. She tried to do some very light work on Thelma but realized that she isn't able to do that yet.

Cosima would love to have more visitors now that she is at Thelma's and she has much more time to visit and catch up with her friends. Please call Thelma's at 575-829-3949 just to make sure they will be home. It is much easier to visit in a private residence and she would love to see whoever is able to stop by.

Christmas pics






Cosima's friend Linda sent us some pictures of the Christmas celebration at her house. She said it still hurts Cosima to laugh and it was hard to keep her from laughing. But am sure even though it hurts to laugh it is still good medicine.

Looks like everyone had a very good time as evidenced by the big grins on their faces. Thanks for sharing these Linda.

a very merry christmas

A very merry Christmas to everyone! Cosima is very happy to be at Thelma's and out of the hospital.

Today she was able to go to a friend's house for Christmas along with Thelma and Jan. She also got the opportunity to go down to the river and walk by it for a bit. She told Sam she got her walker wheels muddy enough that she had to get them washed off in the water.

Being able to get outside and get the fresh air and be by the river was a Christmas gift in itself.

Thanks to everyone for their thoughts and kindnesses the past few months she feels truly blessed. Being out of the hospital and going to a friend's house for the holiday is so much more than any of us would have even hoped for a few months ago.

It truly is a very Merry Christmas for Cosima and us today.

checked out

It is official Cosima checked out today and is now at Thelma's house. The next stage has truly begun.

3 months might seem like a long time but when we were aware of the full extent of her injuries we couldn't have imagined she would be at her mom's house for Christmas. Her progress so far has surpassed our expectations and hopes.

She and Thelma ran some errands to get a few items they still needed. When Sam spoke with her this evening she was laying in her bed watching a movie.

They were even able to pick up a small Christmas tree to help get in the holiday spirit though with her out of the nursing center I don't think they need much help. Thelma had put up a few decorations but she hasn't been home much since she has been staying close to Cosima.

Her legs are still pretty swollen and she can definitely feel it when she has been doing the physical therapy or walking quite a bit like she did today. Hopefully the swelling will start to subside but it is to be expected at this point. She is still pretty sore and stiff but is getting around very well with her walker.

Her digestive problems have improved quite a bit in the last 5 days. Now that she is at Thelma's and eating all of her own food she is hoping this will continue.

She is very happy to be checked out. Because of all the activity today her appt at UNMH was postponed as it was scheduled for tomorrow.

One of the things that made her the happiest was being able to cut off her hospital wrist bracelet today. That truly makes it official when you no longer have that on your wrist and after over three months she was ready for it to be gone.

prepping for the move

Cosima is getting ready for her move to Thelma's house on the 22nd. She got a new walker that she will be using - it is very similar to her current one. She is working on the details to make sure she is all ready to go.

Currently she is packing up her belongings and Thelma is working on getting her house ready for her new housemate.

Tomorrow she will have physical therapy since it is a holiday week and her therapy will be cut short. Right now it looks like she will go into therapy a couple of times a week after she leaves the nursing facility.

Several have asked for Thelma's address so here it is:
134 Camino Azul Box 14
Jemez Pueblos, Nm 87024

Cosima is very excited to be on to the next stage very shortly.

throwing snowballs


It turns out physical therapy can be fun! Cosima told one of her physical therapists that she was tired of being inside doing her therapy and asked that they go outside.

It had snowed there (seems the cold weather and snow is affecting the U.S. all over) and the therapist had her throwing snowballs at him. Not to worry she was being very careful to not loose her balance. The therapist was hiding behind trees and she was pelting him with snowballs.

Sounds like a whole new way to receive therapy and use your arm muscles. Maybe this will become the new physical therapy gold standard when it snows. It definitely made her smile and changed up her routine. I wish we had enough snow left to get in my own snowball fight.

Sorry for the delayed post but Sam had been trying to reach her for a few days and hadn't been able to reach her. It turns our there is something wrong with her phone. If you have been calling she is not ignoring you. If you want to speak with Cosima call the nursing center directly.

As for Christmas she is already making plans to go to Michael and Linda's house for Christmas dinner if she is up for it and not too tired from the process of being checked out.

We are hoping for more snow in New Mexico so Cosima can keep working on her snowball making and throwing skills. We will wish for snow in Seattle as well so we can keep up with her when we see her next. We don't want to loose the snowball fight or really we just want to hold our own. In fact it might not be a bad idea for all of us to get in some practice so she doesn't take us by surprise.

getting ready for Thelma's

Sam spoke with Cosima yesterday and she was a bit sore from all the physical therapy this past week. She is taking the weekend to recover a bit and get ready to start the process again.

On Monday she is going to check out the place where she would have ongoing physical therapy as an out patient when she is at Thelma's. The facility is about 45 minutes away from the house so it shouldn't be too far to drive for her appointments.

She is still having a few digestive issues but said she is going to "power through them" and with time is thinking it will improve.

Having the date to go home is very exciting and Cosima and Thelma are making plans to ensure she will be comfortable there and that her space is set up. Someone has offered a new bed for the bedroom and they are working on other things to ensure it all is ready for her. The 22nd will be here soon so they want to have it all set up.

"C" day is coming

Well the doctors and insurance company heard about Cosima's walking up and down the 19 steps and feel she is getting close to being checked out.

Right now they have "C" (checkout) day as December 22nd just in time to meet her Christmas self-imposed deadline. The doctors feel she has made such good progress and with her mobility that she is ready to head off to Thelma's very soon. The 22nd isn't far away at all so it almost seems like this has crept us on all of us.

Who would have thought 3 months ago she would be this close to being discharged so we are truly grateful for all that has happened.

Cosima is still having some digestive issues and she is working to see if by adjusting her diet she can get this resolved before "C" Day. With all that has happened to her physically it isn't surprising but is a bit frustrating. It might be some of the food she is getting at the nursing center is a bit different than her normal diet or that her body is still readjusting to solid foods. At this point she still isn't sure and neither are the doctors.

But like everything else she has overcome we are sure she will get through this as well though it has been challenging. The digestive issues have been a bit hard to deal with but as with all of it Cosima is managing to cope with her smile still in place.

a cane

Well it seems appropriate this time of year that with the candy canes Cosima is working on walking with a cane! This sounds even better than the peppermint (or even yummier those sour patch ones) candy cane version.

Most people might not be so excited about a cane but this is a big step up from the walker - plus it isn't so bulky. She called Sam to tell him to make sure to put this on the blog as she is excited about this new installment in her recovery.

We all await the next thing she will surprise us with so stay tuned, or reading in this case.

no big outings

Unfortunately Cosima didn't really feel well enough when Zach was visiting to venture out anywhere. She had big plans but they fell through when she wasn't feeling so good. Zach left early Sunday morning to head back to Virginia but hopefully the next time he is out he will be able to get out with his mom.

Cosima was able to walk all around the nursing center outside. In the rocks, on the paths, on the grass, and pretty much everywhere she could. Her balance is really improving and she gets around very well with her walker.

The physical therapy routine begins all over again on Monday morning so we are hoping she will be ready to go and will be feeling better.

not so fresh seafood

Unfortunately today Cosima got food poisoning. It seems like it was most likely from some shrimp. I always say not to eat seafood in a landlocked state but when you don't live near the water it is hard to resist seafood and shrimp in particular.

It is a bit easier to have the landlocked rule when you live close to the water. And since Cosima doesn't really eat beef sticking with red meat inland doesn't work as well. Sam told her to just stick with the chicken but Cosima said she needs to eat something other than chicken as that gets a bit old for her.

So Cosima isn't feeling very good today but hopefully she will feel a bit better tomorrow.

She is really having a good time with Zach in spite of not feeling super well. Having the three of them together - Cosima, Thelma, and Zach is still a good thing even if you aren't quite feeling up to par. Sam was able to chat with all three of them this this evening to catch up.

Tomorrow she is going to take a shower in her own bathroom in her room. This is a simulation for her seeing if she will be able to shower on her own at home. Since this is one of the things she needs to accomplish on her own she is anxious to pass this next test.

huge difference

Zach flew in on Thursday night to see his mom. When he saw her on Friday morning he was amazed at her progress since he had last seen her. He really couldn't even believe how well she is doing. Since he had seen her a few weeks ago she has made huge strides. The difference is huge compared to just a short time ago. Sam felt the same way when he saw her.

I have people who ask me regularly how she is doing and when I tell them that she is up and about and using a walker they can't believe how far she has come in a relatively short period of time since her accident. Even after sharing it so many times I still can hardly believe it myself.

Cosima was really looking forward to her time with Zach and am sure she will come up with some ideas on someplace she would like him to take her so she can escape from the nursing center for a little while. Stay tuned on where she ends up going this time.

magic number 19

Cosima had an appointment today and to get in the office she had to walk up and down 19 stairs! We continue to be amazed at her progress and determination - maybe I should double-check and see how many times I have already said this but it continues to be true. One of the conditions of her being checked out is walking stairs so it looks like she is getting this condition checked off quickly.

She was also able to wash her hair by herself in the shower. Seems like a small thing but when you take your next shower notice how you need to lift your arms and use both of them to shampoo. Sometimes some of the mundane everyday tasks can be much more complex than we ever imagined.

Both of these successes make it that much closer for her to go to Thelma's. Will continue to let you know of her next big steps.

happy birthday!

Happy Birthday Cosima!

Today is her birthday and several of you have sent birthday wishes to us for Cosima. Thanks so much we are passing these along to her.

She was able to get out to a movie today and she really enjoyed it. It was the new one about Australia and she said it was definitely worth watching. She has wanted to get out to the movies for several weeks now so this was a real treat.

One of her friends came to visit today with a cake to help her celebrate. They were born 4 hours apart at the same hospital and share a similar profession so one could say she received a visit from her "twin" today. She appreciated the visit and cake is always good.

goals

In order for Cosima to make her goal of being home for Christmas she has been told she needs to be able to accomplish the following 2 items:
1. Be able to climb stairs.
2. Get in and out of a step in shower all on her own.

She is focused on working towards being able to do both of these in time for the holiday but they will both be challenging for her.

On Weds before Thanksgiving she overdid it by quite a bit and paid the price with a very sore body the last few days. This is very typical in the recovery process and most everyone who is recovering from a major injury or surgery will do this at least once in their efforts to get their strength back. She was feeling a bit better by Sunday evening but was still just a bit sore.

Physical therapy starts again Monday and she will be working towards climbing stairs and getting in and out of the shower.

broccoli not turkey


Cosima was able to go out to eat at Denny's on Thanksgiving with Thelma and Jan. She didn't get the traditional turkey day dinner but instead opted for fish and broccoli. Being able to choose her own meal and get out for a bit was very welcome and she was excited to be able to do so.

Sam spoke with her when she was at the restaurant and he could tell how happy she was to be having Thanksgiving out of her room. Of course the broccoli probably added to her excitement as that is one of her favorite foods.

At this rate looks like a Christmas wish of being home might come true with how well she is doing.

a thankful turkey day


We all certainly have much to be thankful for this Thanksgiving. Cosima has made incredible strides and we know this will continue.

Thelma asked me in a card to mention again on the blog how thankful she and Pat are for all the cards, healing prayers, and everything that has been done. She asked if I could word it better but I would say she has it covered. She mentioned that Pat's "attitude of gratitude" is also contributing to her improvement. In the card I loved the part where she said that she is so proud at this time to be Pat's mother.

On Thanksgiving Cosima, Thelma, and Jan will be going out for a Thanksgiving dinner. This will be a great break for her and a wonderful way to celebrate the holiday.

Wherever each of you are this Thanksgiving we hope you enjoy your time with your family and friends. All of our family will be counting our blessings even more this year than the last and stuffing ourselves with turkey and pie. Happy Thanksgiving!

improving makes for a busy day

Seems that making progress in your recovery is a busy process. Sam got to see first hand on Monday how recovering is Cosima's full time job right now.

Her day starts off early and by the time she has gotten dressed, brushed her teeth, cleaned up, made her bed (yep she can do this by herself now), and eaten breakfast it is time for therapy. Her therapy lasts for about 3 to 3 1/2 hours each day. Between therapy session she eats her lunch and puts on a variety of creams to help with her muscle soreness.

After her therapy is over she has some time to write cards, go outside, put on more creams, and then it is time for dinner.

After dinner she can make some calls or read but then it is time to get ready for bed. Since everything takes her much longer to do getting ready for bed and ready in the morning take quite a bit of time and effort.

The therapy is exhausting and intensive but the strides she is making are incredible. One therapist told Sam Cosima is ahead of schedule and where they thought she would be. This is the kind of news we like to hear but aren't surprised knowing her strength and determination.

Thelma went back home for the day to get supervise the concrete walk being put in - it is actually a concrete walk so Cosima won't have to walk over stones to get in the house instead of new asphalt mentioned in a previous post. She will be back in time for Thanksgiving to celebrate with Cosima.

Here is to more busy days so she can be discharged in time for Christmas!

walking and biking

Sunday Cosima had quite a bit of physical therapy. She spent most of the time walking with her walker and then on the stationary bike. Part of the therapy is also doing arm exercises and on the bike she uses her arms as well. She also got outside to enjoy the fresh air and sunshine.

She is still stiff and one of the hardest things is for her to initially get herself up. Just think of sometimes how it can be difficult to get out of a chair after sitting for a long time and that is how it is for her all of the time at least for right now.

Thelma is getting things set up at her house for Cosima to come live with her after she is discharged from the nursing center. Fresh asphalt is being poured to make the driveway smoother and handrails were installed on the steps. Both of them are looking forward to this transition when it happens.

The scrabble game they started the last time Sam was there got finished though Sam didn't tell me who won so I am guessing it wasn't him.

chinese and shoes


Cosima got her wish to be allowed out of the nursing center for a few hours to find some shoes. Her feet are a full size bigger now so her other shoes didn't quite fit. She got the doctor to sign off on her leaving for a bit of freedom.

Sam said she tried on about 40 pairs of shoes in her quest but in the end she found some new tennis shoes to do her therapy in. She also picked out a pair of slippers to keep her feet warm and comfortable to lounge around in.

They also stopped for some Chinese takeout as she had a craving for some good Chinese food and there isn't much of that where she has been. While I was speaking with Sam on the phone Cosima was giving a commentary in the background of all that they had done as well. She was very excited to have gotten out for a bit and am sure she is already planning her next outing.

Sam is impressed with her progress since he saw her a couple of weeks ago. Cosima was walking all over the store with her walker and getting around quite well. Her knees are a bit stiff and sore but that is to be expected.

There is therapy scheduled for Sunday due to the holiday week so she will still have a full week of therapy to keep her on track.

shopping?

Cosima told Sam last evening she is asking permission from the doctor to go shopping while he is with her this weekend. There are a few things she wants but mainly she is ready to get out and about and have a bit of an adventure. I for one definitely understand the need to shop and after over 2 months I would really want to head to the store as well.

She really wants some different shoes since her feet are swollen still and she needs a much bigger size, plus new shoes are always a good thing.

We will hope the doctor signs off though it may be pushing it just a bit.

It was pretty funny when she told Sam that she is somewhat of an outdoor person and was really missing being with nature - Sam responded by telling her she was more into the outdoors than anyone else he knows and she is definitely an outdoor person. I think we all know how much she loves the outdoors so that was quite the understatement.

While she is speaking with the doctor she is also going to see if she might be allowed to go out to dinner and a movie on Thanksgiving. I mean if you are going to ask permission you might as well go for broke. It does seem like a reminder of when we asked our parents for permission and we just decided to ask for all of it in hopes at least a bit would be approved. Cosima seems to be using the same technique that all teenagers have mastered.

venturing out


Tuesday Cosima decided she wanted to be the one to pick up her new glasses. Having not ventured out other than to the hospital and for her eye appointment she wanted to get out if only for a little bit. With her love of outdoors and nature it has been hard to be inside for most of the day and just be able to go outside around the nursing center.

Jan was able to take her in the car. With a bit of manuevering she was able to get herself into the car and then used her walker to walk in to the eye doctor and pick up her glasses.

The milestones keep adding up - definitely seems like she is doing everything in her power to make her Christmas goal.

massage

Cosima was in excellent spirits when both Sam and I spoke with her on Sunday evening. She got a massage yesterday and said it felt very good. Definitely helped her muscles feel better after all the therapy last week. Said it was just what she needed.

Monday starts early - she had to be up at 6:30. I think since it is a nursing home as well days get started early. Makes it a bit tougher for those like Cosima who aren't morning people. And that was definitely passed along to her 2 sons as well.

She is looking forward to her therapy again even though it is so hard because it means she will keep improving. She is very focused on her goal of Christmas so she plans to keep working toward that.

Cosima expressed her gratitude again to everyone who has sent cards, come to visit her, and spoken with her. She is very grateful for all that everyone has done and continues to be amazed at the outpouring of love she has received.

a bit sore

Cosima seemed to be in very good spirits when Sam spoke to her this evening.

Thursday and Friday she had very intensive physical therapy and is a bit sore today as a result. She went up and down the halls numerous times so she is building up her strength and working on walking.

One of the best things is that she is able to use the restroom on her own now so that definitely increases her self sufficiency.

Her goal is to be out of the nursing center by Christmas which is aggressive - if she isn't quite ready to be released then she wants to at least spend the day with Thelma at her house. Cosima is definitely working towards this and we know that she will do everything she can to achieve it if at all possible.

She is still requesting a break from visitors but we will let you know when this changes. She is still trying to get her strength back right now.

Cosima in action



Gracia took some picture of Cosima yesterday walking and on the stationary bike. One can tell by her huge grin how happy she is. Of course I think we will all have huge grins on our faces when we view these pictures.

Gracia also said she worked up quite an appetite and for dinner she literally licked her plate clean.

her own walker

Cosima now has her own walker she uses. This means she is definitely fitting in at the nursing center since that seems to be the preferred mode of transportation.

She is walking very short distances in therapy with a band around her and with a chair directly behind her so she can sit down as needed. Being able to move around on her own (well almost on her own) is huge - after all she has pretty much been in bed for most of the last 2 months. She is finally gaining some independence and mobility though it is still very limited.

Her physical therapy is extremely intensive right now. She sees 3 different therapists each day during the week and it is very exhausting for her. She has so much they are working on with her and it is for a large portion of her day.

The dentist is one of the next priorities on her list and she wants to go when Sam is down there next weekend. She will need someone to lift her in and out of the chair so she has requested his assistance.

As of right now she is still asking not to have visitors. The therapy is wearing her out and she is still concentrating and putting all of her energy into therapy. When Sam spoke with her this evening she was very tired and reiterated her request for the time being. If anyone knows of anyone with plans to visit please ask them to hold off for right now.

Thanks again for your understanding. We are very pleased about her being able to use the walker more and the fact she is seeing progress from her therapy.

partial weight bearing status

Cosima has reached weight bearing status in one of her legs and partial weight bearing status in her other leg. And some weight bearing status in her right arm and left shoulder. This is a great step in her recovery. What it means is that progressively with the help of a walker she will be able to stand up and put just a little bit of weight on her legs for a short period of time. This will increase with time and therapy.

The visit to the hospital was very exhausting and took quite a bit out of her. During her visit to the hospital she even stood up for a minute to show the doctor her legs are ready to begin taking the weight. Very exciting! And frankly very shortly will make trips to the restroom much easier.

Because of the progressively increased activities and physical therapy Cosima has requested at this time to hold off on having any visitors for a bit. Her concentration and energy needs to be put entirely into her therapy and she wants to save all of her energy and strength for that right now.

We really appreciate all those that have taken time to spend time with her and visit her but she is requesting a break. I will update the blog when she is ready to have visitors again.

Thanks for your understanding and am sure that everyone wants her to be able to focus her energy on her physical recovery as she is at a critical point having now reached partial weight bearing status.

Having to actually make a request like this is a good thing since so many of the people where she is at don't receive the visitors that she does and she feels blessed that she has so many people wanting to come visit.

Please contact me if you have any questions about her request.

welcome mobility

Today we had some great news - I love it when Sam comes in the door asking me if I want good news or better news after he has spoken with his mom. Cosima has some new found mobility. She has figured out how to get out of her bed, onto the board, and into her wheelchair and is then able to push herself around just a bit. This was something she figured out on her own - though any of us who know her aren't surprised in the least.

We are excited that this gives her some freedom previously she didn't have. She can also put on her pants and shirt as well.

The bus was able to take her to the optometrist today and she had some very good news there as well. Her eyes were not affected during the accident - there was a bit of concern that some damage could have happened during the accident but fortunately nothing did.

A change of prescription is needed but that was not due to the accident but rather just a change in her vision from the last time she had been to the eye doctor. As anyone who wears glasses/contacts knows it seems the vision changes with each visit. A new prescription was ordered and she should have her new eyes in 7 - 10 days.

Tomorrow is the weight bearing test at UNMH. She has an early morning appointment so we are hoping her wait won't be nearly as long this time. Again our fingers are crossed that she has reached weight bearing status.

A very positive day - even more so given it is a Monday. So from Cosima an excellent Monday report.

new digs

A new room - Cosima has been moved to room 113 which is a private room. She was on the waiting list and finally she has her own space. It is just down from where she was previously. It will be great from a privacy standpoint to have her own space and she is very happy about it.

She has gotten all her items moved and is all set up in her new room as of today. The fridge she had in her old room was moved so she still has access to her own food items.

Zach is still with her and they are enjoying their time together. This evening they were watching a movie on DVD.

Since it is the weekend she has taken a partial break from her physical therapy but it will resume on Monday. She did a bit on her own this weekend without the physical therapists but it is easier to have the structure and someone directing her progress.

diet and therapy

Cosima has been having some difficulty with her glasses lately so that makes it a bit difficult for her to read and watch her DVD's. Since so much of her time has to be spent in bed entertainment is very important and she hopes that she can get to the optometrist this next week to get her prescription taken care of. It isn't too far from where she is at so hopefully that will work out. In the interim she is making do.

She is having good success with her diet through several sources. A small fridge is available for her use and some of her friends have been able to bring her items she needs. Sometimes the food being served works as well so she eats that when she can. All in all it seems to be working out well so far which is good and she has some options on a daily basis. In fact tonight for dinner she is having Chinese food - sounds pretty good to me.

So far she has been off the prescription drugs for about a week now with the exception of Wednesday for a few hours. Cosima has been able to just take Advil right now and it is working out for her. She would really like to be off of the Advil as well and is working towards that. So much easier to be yourself without the drugs in your system.

Physical therapy has been continuing and she is progressing well. There are doing quite a bit of therapy on both her arms and legs which does take a bit out of her since it is so strenuous.

She is really enjoying her time with Zach right now and and also had a visit with Mary Ann today.

getting some rest

Cosima has been getting some rest these last few days. She doesn't seem to be 100% caught up but is feeling a bit more rested.

Wednesday her visit to University of New Mexico Hospital didn't turn out to be for the weight bearing status check like she had originally thought. It looks like that may happen next week. Instead they did x-rays of her spine to see how that was healing and it appears to be healing well. It was a long day - 5 hours waiting for the results - without a ton of information. More of a hurry up and wait scenario which can be a bit frustrating.

Cosima now has a board that assists her in getting from her wheelchair into the bed. Previously it would take two people to lift her and now it is quite a bit easier and she can help a bit with the process. This makes it a much easier transition even though she would really like to be able to manage it all herself.

Zach is coming in this evening from Virginia and Cosima is understandably very excited to see him and spend some time with him. He will be there until Tuesday.

weight bearing status?

Cosima is anxiously awaiting her visit to the University of New Mexico Hospital tomorrow. They are running tests to determine where she is at with her weight bearing status.

Some of her physical therapy has been on hold a bit until her weight bearing status is determined and we have a better idea of where she is at. To reach weight bearing status is a major milestone in her progression and will determine the level of therapy she will receive.

The therapists have been holding off a bit until the latest tests so tomorrow is a big day for her. With all of her broken bones and the fact it has affected all 4 of her limbs the weight bearing status is a major step in her overall recovery. Once she has been classified as weight bearing it will increase her physical therapy and speed up her healing.

We will all have our fingers crossed for tomorrow.

quiet time

It has been a busy weekend with many visitors coming to see Cosima. It has been a good weekend for her though she does need some time to herself for a bit now.

Cosima made a personal request that she have some down time in the next several days. If visitors can be kept to a minimum and some of the healing that has been coming her way be suspended for a few days she would be grateful. For the next few days she wants to have more alone time both mentally and physically as she feels it would be a good break for her. With so much activity she feels in need of a short time out.

Her catheter was removed and she is glad to have that gone. She also has a visit with an acupuncturist scheduled for this coming week.

Tomorrow she will begin her physical therapy regimen after having the weekend off.

busy busy

Cosima told Sam that it was a very busy day. She had quite a few visitors today so she enjoyed getting to catch up with them.

She is having physical therapy each day during the work week and it is going well. For the last 1 1/2 days she has been off her pain medications. She is having a bit of pain but it isn't unbearable. Cosima is hoping being off the pain medication will help reduce her stomach pain and make it easier for her to digest her food as well.

In addition to all the other activity the nursing center has had Halloween trick or treaters coming in to get candy and visit the residents. I think this is great especially as most of the residents are older and am sure it is a treat for them to have children visit and see them in their costumes. I love Halloween and would be delighted to have trick or treaters come by for 2 days before the holiday - maybe I will have to figure this one out.

cards and more cards


All of the cards and letters Cosima has received have filled a drawer. She is so grateful for all of the support and correspondance she has received - in fact she is actually in a bit of awe at how many people have reached out. These mean so much to her and those who have been there have been reading them to her. Please keep them coming as they play a role in her recovery.

Sam told me several times on the phone about just how many there were as he couldn't quite believe it either.

Cosima has touched so many lives and we appreciate that some of this is coming back to her during this difficult time.

Our deepest thanks to everyone who has taken the time to write - it isn't a lost art yet even with the internet!

schedule


Before Sam leaves he is trying to put together a schedule. So many people have helping out, been visiting, and offereed to assist we wanted to put together a more structured schedule over the next month or two. We want Cosima to know someone will be with her on most days for support and companionship.

So far the schedule consists of the following:
Monday - Angele
Tuesday - Jan
Weds - Angele
Thursday - Gracia
Friday - Gracia
Saturday - open
Sunday - Jan

Sam and Zach are going to try have one of them come down most weekends - it would be a Friday through Monday timeframe though every weekend may not always be possible. Once they have plane tickets and have coordinated through work we will post those dates.

Thelma will also be around quite a bit as well but we don't want to wear her out and also allow her to go home for some days so she can get things taken care of at home and rest. Not to mention sleep in her own bed - we all can relate to how much better we all sleep in our own bed.

If you are able to come down for the day to help out please email me at kaylaschober@gmail.com and we will put you on the schedule. This way it will help us spread out her visitors and also ensure she will have someone with her most of the time during visiting hours. Seeing her friends and family is very important to her and a critical piece to her recovery.

Today has been a very difficult day. Emotionally it has been very hard as she is starting to process even more what has happened to her and what it means for her. I cannot even imagine having to come to grips with the extent of her injuries and the long journey to recovery and have been so impressed with her strength. Even though she has been very strong there are obviously times it will overwhelm her and today was one of those days. She is still having significant pain as well and we aren't sure yet of exactly the source.

This makes it even harder for Sam to have to leave this evening as she keeps asking him how many more hours he will be there for today. Knowing that he has started the process to put a schedule in place makes it just a little bit easier.
We would love to have the gift of time from anyone who is able so please let us know if you would like to be on the schedule. This is not to discourage visitors or anyone who is just able to stop by since we definitely want that to continue. We are just trying to space it out a bit and ensure someone is with her as having a friend with you can make a world of difference, especially if you can know in advance who will be there.

Thanks again for all the thoughts, prayers, visits, and cards it certainly makes her family feel so much better when we aren't able to be there ourselves that there are so many people watching out for her.

Sorry for the long post - I have always said I wanted to write a novel but honestly wasn't trying to do that today.

payback

After all the years that his mom took care of him while growing up Sam is paying a bit of that back. While he is in Arizona he has been able to help take care a bit the last few days. He has helped brush her teeth and put on her lip salve. When she wants a favorite yogurt he is able to go get it for her. Knowing he can be there for her and spend time with her just holding her hand, keeping her company, and chatting is healing for both of them.

Today Cosima had a good morning. After eating later though she did have some stomach pain and we are unsure if this is related to the food she ate or is from something else.

Sundays seem to be pretty slow days since the staff levels are lower and most of the appts, check-ups, and therapy come during Monday through Friday.

Tomorrow she has several visitors expected along with her appts and therapy so it will be a busy day - seems like it may consist of the same busyness many of us experience on Mondays.

broccoli and chocolate

Broccoli and chocolate - 2 items Cosima has been craving and she has had both of them now. Last evening she had broccoli and chicken and today she was able to eat a piece of Belgium chocolate.

Today she is a bit more tired but then it was a pretty busy day yesterday. She is currently taking a nap. The therapists aren't there on the weekends so she has a bit of a break.

The therapists at Rio Rancho just started with the assessments so she hasn't gotten through many of the exercises but when she gets those she will be able to practice those on the weekends.

a big change


Sam is amazed at how far his mom has come since he last saw her. Cosima is in excellent spirits.

Today the therapists got her in the wheelchair to do some tests. Afterwards Sam took her outside in the wheelchair so she could get some fresh air and enjoy the sunshine. She was even able to get off road a bit onto the grass and hug a tree which she has done ever since Sam can remember.

Cosima is able to move her arms and legs quite a bit and can even lift her leg off the bed.

The dietitian met with them today and go over her diet and they are working with her on her special dietary needs. Everyone seems to be very conscientious and nice. The facility is a nursing and rehabilitative center so there are quite a few older people who are there.

It seems like the new facility is a good fit and that they will provide the support and therapy Cosima needs right now.

Nancy's comments

Nancy sent the following email to my sisters and I this evening that I thought was worth sharing.

"Pat is doing incredibly well when you think of her having broken bones from top to bottom or bottom to top! So good about all of it with a fantastic attitude. She made the remark that she felt her body had really needed a rest and a vacation - I did suggest she try a different mode the next time that the need arises. She was singing in the shower the night before I left - a slightly different experience than most showers - it takes place on a plastic bed with holes in it! And she is so appreciative of everything done for her. She was moved today to the facility where she can have more rehab and therapy. Hopefully that will go well - has the advantage of being about 45 minutes closer to her Mom and friends.

You would all love Sam's grandmother - what a dynamo and just a kick! 83 years old -very petite - uses a walker like Grandma Schober had - says she just takes it along so she has a place to put her purse. And when she takes it along you need to be prepared to RUN to keep up with her! She married her husband's brother after her husband died - but says she is not getting married again as she is all out of O'Neals.

So I did have a good time even tho' under different circumstances than would have been chosen by any of us"

Thanks again Mom for helping out - we are very lucky to have you!

new digs

Cosima has been moved to the Rio Rancho Nursing and Rehabilitation Center.

Rio Ranching Nursing and Rehabilitative Center
4210 Sabana Grande NE
Rio Rancho, NM
505-892-6603

This is the place where the focus will be on rehabilitation and therapy. Both Nancy and Jan were very impressed with this facility and met some of the therapists they feel will work well with Cosima. Her physical therapy will increase from what she has been receiving at Kindred.

has food ever tasted so good?

Cosima is continuing to do well eating since the feeding tube was removed. Even though it is mechanically processed being able to eat and taste has to be huge after not eating for over a month on her own. She has been doing very well with her diet so far.

Last evening she was able to get a bath which was something she was eagerly looking forward to. The small things in life like eating and having a bath become big deals when you can't do them. I will have to remind myself at dinner tonight to really enjoy my food and not just shovel it in.

Her spirits remain high and it will be good for her to be a bit closer to her home and many friends. It looks like the move will happen tomorrow morning now but we will update as we get any information.

Nancy left today to head back home to Friday Harbor and Thelma is currently with Cosima right now. Sam will be coming to New Mexico on Friday morning to spend some time with his mom. She is definitely looking forward to their time together and Sam is anxious to get back as well and am sure we will be amazed at how far she has come.

a move is in the works

It looks like Cosima will be moving in the next day or so to a new facility. She will be discharged from the hospital and will be going to a nursing/rehab facility. We are hoping they will be able to provide both the nursing and rehabilitative care so she won't have to move again but this could change.

Jan and Nancy were able to go look at the 2 options today and were able to choose the one they felt was a better choice for her. It is in Rio Rancho so it may be a bit closer for some of you which will be good. I am very glad the timing worked out so my Mom was able to help look with her nursing background and ask the right questions.

Right now it looks like Cosima will have the semi-private room as none of the private rooms are available currently. They were able to place her on a list for a private room but these are in short supply.

Passing the swallow test was a big step in her moving to the next level of care so this is the next progression in her recovery.

Please check this website before visiting her as we will update it with the address once we have been told she has been moved by the hospital. I will update it as soon as we have confirmation so this will be the first place to get the information after the family has been told.

she passed!

Cosima passed her swallow test this morning with flying colors! She is currently drinking a glass of water. At noon she will have food - it will be mechanical soft (fancy name for the already been chewed kind of food) but it is food and she will be eating it on her own. This means the feeding tube is gone - so one more tube down.

As we can imagine Cosima is ecstatic to have passed. Cosima and Nancy met with the dietitian and she was very helpful and recognizes and understands her dietary needs. The hospital will be very accommodating to the dietary requests.

Angele, Cosima's friend, showed up shortly after the test and she is off to the coop to pick up some special items for her that aren't available at the hospital. There is a small fridge they can store these items for her use.

Thelma will be back down to the hospital tomorrow and Jan will be coming down tomorrow as well.

weekend wheels

This weekend has gone very well. Nancy was able to do the therapy with Cosima that she learned from the therapists. This is good as it means she didn't have time off and could keep progressing.

Cosima was able to spend quite a bit of time in the wheelchair though there still is some pain from her broken pelvis when she sits in it. She has also gotten in plenty of outside time as well. Her spirits are good and Nancy reports she is doing marvelously well considering all that she has been through.

Tomorrow is the swallow test which is a big one since that could mean solid food for the first time if she passes. There is obviously a bit of stress involved looking forward to this since it such a big step and Cosima wants to make sure she passes. The big focus over the last few days has been practicing the swallow test.

Several visitors stopped by so she enjoyed seeing her friends. Thelma had to go back home today since her furnace went out but they found the part so they should be able to get it fixed for her tomorrow.

Sleep has been much easier the last few evenings as well. Cosima feels she has been resting much better lately.

We all have our fingers crossed for the big test tomorrow and will update the blog when we have any news.

therapy and more therapy

Cosima once again got quite a bit of therapy today. She seems in good spirts and said that today (Friday) is going well for her.

Nancy (my mom) is there with her today along with Thelma and Jan. During the therapy this morning Nancy spoke with the therapists and learned what they were doing so she can help Cosima with some of the exercises over the weekend. The therapists aren't at the hospital during the weekends and they thought this would be great is she could help Cosima continue it when they aren't there.

Another swallow test is scheduled for Monday so Cosima is getting ice chips frequently in preparation and the speech therapy helps get her ready as well. Nancy told her that she would see if there was any way to get chocolate flavored ice chips since Cosima was wanting some chocolate earlier.

She has been up and about for most of the day and was able to get outside for quite a bit. The weather was beautiful outside today so she was able to take advantage of it.

another change of the guard

Zach left New Mexico Tuesday evening to head back home to Virginia Beach Having him there for all this time was a great help and know that Cosima was grateful to have him there with her.

My mom, Nancy, is going to travel to New Mexico on Thursday to be with Cosima for 5 days beginning on Friday. She is a nurse so she will be able to help manage her care and ask the medical questions we might not know to ask. She has been the one I call about questions and double-check my information with though I still get it wrong sometimes in spite of her assistance.

Thelma will be there as well during this time. She was able to go home for a couple of days to get things caught up there but is heading back to Kindred to be with her daughter.

Jan and Gracia will be with Cosima on Thursday.

UNMH check up

Tuesday Cosima saw the Orthopaedic doctor at the University of New Mexico Hospital to check in on how she is healing with her broken bones and her wounds. Things are progressing and her wounds are healing. As part of the procedure they give a weight bearing test as well. Right now she isn't weight bearing yet which is not a surprise. This was part of the test they give as an overall check.

She is still functioning well without any additional oxygen so it looks like she is off it permanently right now.

Therapy has been continuing as well this week.

sunday shower

Sunday was a pretty low key day. The big news is that Cosima got the shower she wanted. They put her in a shower chair and then wheeled her into the shower room. Zach was able to help her shampoo her hair at the same time. She really enjoyed this but sitting in the chair is still a bit painful on her tailbone though I think taking the shower was definitely worth it.

Last night she didn't have any restraints so that made it easier for her to sleep.

The respiratory therapist decided to remove her oxygen completely so she is no longer on oxygen right now. They monitored the oxygen levels in her blood throughout the day and if she drops below 87 they will restart it. So far she was able to stay off the oxygen even through the night.

Several visitors came by as well - sorry we haven't been able to keep track of everyone to mention them by name but having the company and seeing her friends is good. The best time for visits are late morning and early afternoon. She is most awake then and her pain levels are most controlled at this point. Other times are usually when she will have therapy and have hospital staff checking on her. She may have appointments during the late morning and early afternoon but for the most part this is the best part of day to get in some quality time with her.

Cosima is still doing well with the ice chips - having these about once an hour. It seems she is aspirating very little of the ice chips so this is good progress and hopefully will eventually lead to her being able to have solid foods.

Monday is a busy day as physical, occupation, and speech therapy are all scheduled to happen. We got a bit off track at the end of last week with these because of everything else that was going on so it will be good to be back on schedule.

ready for a day off

Cosima told Sam today that she is ready for a day off from the hospital. I am sure she would like a break but it seems like a day off may be a bit premature at this point. Sam told her it was like a job where you don't get time off but fortunately she didn't ask about a paycheck from this job other than getting better.

She was able to go outside again for a short while and this time seems to be a welcome respite for her.

Therapy will resume on Monday and the speech therapy should help her get ready to pass her swallow test so she can eventually move to solid food.

ice chips

Cosima is able to have 1/4 cup of ice chips every 2 hours. So far it seems she is handling these much better with minimal coughing. She hasn't had speech therapy for a few days now but it should resume again on Monday. This may slow down her ability to take the swallow study but Zach was told we shouldn't try and rush it.

She had a test to determine if she possibly has gallstones but so far the results aren't back yet. This would no be uncommon for her to have these at this point and is standard procedure to test for gallstones.

Cosima has tried to get out of bed now during the night when she was by herself so they are concerned she might try again. She does seem to have a reaction to the morphine so this may have contributed to her trying to get up and her confusion. She hasn't tried for a bit now so hopefully we are past this point though while she is by herself during the night she is restrained to make sure she won't hurt herself if she tries again.

On Saturday Jan was able to take her outside again in the wheelchair and she enjoyed getting outside of her room again.

better spirits

Cosima was in much better spirits on Saturday. It helps if you don't have any major procedures and are left alone a bit more.

She was able to go outside again today and am sure that lifted her spirits. Being able to get a bit of fresh air and venture outside of her room provided a boost.

We should have more information later but wanted to let people know it has been a much better day for her.

feeding tube

Thursday was a challenging day. They needed to reinsert her feeding tube through her nose but Cosima didn't want to have it done as she was wants to have solid foods. Her swallow test showed she wasn't ready so she had to have a feeding tube put back in so she could get nourishment. They might put a feeding tube in through her stomach but this would need to be done at UNMH and it can't be done until next week.

They aren't able to give her the swallow test again for another week as she needs to strengthen her upper esophageal sphincter (UES) muscle before it can be done again.
During the test on Wednesday it showed she was still aspirating the food she was given and the concern is that it could end up in her lungs which would be dangerous.

It took several attempts but they were finally able to get it back in. They did sedate her some for the procedure but it is still very uncomfortable. The rest of they day she was sleeping from the effects of the sedatives.

Also on her Weds trip to UNMH they removed the sutures from her skin graft and took off the cast on her right arm. She was given a removable wrist brace for support.

Getting the feeding tube back in was a major hurdle and we are hoping for a much easier day Friday.

visiting UNMH

Cosima went to the University of New Mexico Hospital (UNMH) today. She rode in the ambulance back to UNMH and met with the spine clinic in the afternoon. Her neck brace is off now which should make it a bit more comfortable for her. This should be a good improvement as the neck brace put her in a position where she was facing upwards and didn't have much mobility from the neck up.

Unfortunately she is still on the feeding tube which she isn't thrilled about. She didn't pass the xray test today as she isn't quite ready for it to be removed. They will see where she is at in about a week. It was a bit difficult putting the tube back in as she was really wanting to have solid foods at this point.

So far we have still been impressed by how she has progressed in spite of her injuries. She will still have challenging days ahead as she realizes the challenges in front of her but know her strong spirit and determination will help pull her through.

new bed

Cosima seemed to be a bit uncomfortable today and the hospital determined that there might be something wrong with her bed so the gave her a different model which was the newest one they had. So far it seems to be a bit more comfortable and she is pleased with it.

She again had physical therapy in the morning and was able to get in the wheelchair again and venture outside. Her spirits did start to improve in the afternoon again - am sure going outside helped quite a bit.

Tomorrow she has an appt with the speech therapist and they will see if she can be taken to xray for the the swallow study. If all goes well she could have her feeding tube removed and be on solid foods. Not sure if ice cream and chocolate will be first on the agenda but know she will be making requests.

Also on the schedule for tomorrow is her visit to University New Mexico Hospital to the spine clinic. She might be able to have her neck brace removed - at least our fingers are crossed for this one as this will be so much more comfortable not to have it on.

Several visitors have stopped by in the last few days. She has enjoyed the companionship. I know several others are scheduled to visit including her friend Dr Dan. If you are planning on coming from out of town please check with one of us to make sure she will be around as there are several appointments scheduled now at UNMH and we wouldn't want you to miss her.

Cosima has been very thankful for the flowers she has received. She has made a request though that due to the smell that anyone wanting to send any other flowers hold off for now. The smell is a bit overwhelming for her right now and she is in a smaller room that she shares with another patient. The flowers are beautiful and all the thoughtfulness people have shown is very appreciated. Please continue to send cards and your thoughts her way.

on wheels outside


Cosima was able to be in a wheelchair for a bit today and was able to go outside with Zach to get some fresh air. I am sure getting out of the bed helped along with actually being outside of a hospital room for the first time in over 3 weeks (I don't count the ambulance ride to Kindred a week ago).

They did the ice chip test today but her respiration was still a little low so the trach will need to stay in for at least a few more days. Once she passes the ice chip test x-rays are needed to make sure it is ready to come out.

Today she asked Sam if she would be able to leave soon and go to Wal-Mart and then on home. This might be just a bit ambitious right now but we are encouraged that she is so eager to be on her way to recovery. Sam told her once the doctors and nurses said ok he would sign off on it but it would have to wait until then.

She is very ready to leave but we still have quite a ways to go in her recovery process. I think she is still processing all of this in her mind and it might still take a bit for her to wrap her mind around just how long it might take. Remember Cosima is just now being able to process all that has happened while the rest of us have had several weeks to do so.

The central line was taken out of her shoulder yesterday so it was a bit sore especially during physical therapy. During physical therapy they did some range of motion and did give her some pain medication before so it would help with her pain levels. Being on her side is still pretty painful for her at this time.

It seems Cosima is also ready to some of her own hygiene items and was wondering if Zach could go get her some things for her shower. They have a large shower room at Kindred where they can wheel someone in on their bed and the shower heads are in the ceiling. It seems like a pretty slick set-up and am sure a shower would even beat chocolate and ice-cream right about now.

first chocolate now its ice cream


Cosima had quite a few visitors today and it is great she can finally talk and share with those who visit her. Today she seemed in very good spirits and was very alert and interactive. She was even able to get around to watching a movie as well.

Her request now is for some ice cream. First chocolate and now ice cream - Sam was sure her first request would be for broccoli. Guess when you haven't eaten solid foods for several weeks veggies aren't at the top of the list for anyone not even Cosima.

She was given some pain medication last evening and it helps her get some rest during the night. During the days now Cosima is very alert and awake. So far she doesn't seem to remember the accident or her helicopter ride to the hospital but does remember the days on the bike tour before the accident.

Sam was able to speak with her briefly on the phone again today though with the trach he says if he didn't know it was her he wouldn't recognize her voice. We have been getting daily reports from Zach on her progress and current status. Having him there with her right now lets us know she is in very good hands. It seems like each day has been more positive than the last one for several days now which I know is the news we have all been looking forward to.

talking!

I feel like this is the best news I have had to report - Cosima is talking! Her spirits are much higher as well. Just a few minutes Sam was able to speak with her on the phone so that is very exciting. She just started being able to talk this morning. I feel like we are really on the road to recovery with her ability to talk to us now and am sure this will give her a huge lift as well since she can finally let everyone know what she thinks and wants.

She says it does hurt on her side when she moves. The doctors and nurses are going to let her have say in her pain medication as long as her vitals remain stable.

She told Zach she wants some chocolate so I would say we are on the mend. I am sure after all this time she definitely deserves some very good chocolate when she is able to eat. Yesterday she indicated she wanted a drink of something when she saw Zach having something to drink.

Hopefully in the next day or 2 she can be able to start eating. They will first take some pictures of her throat to make sure she is ready.

slow news day

Not much to report on Cosima for the day. She hasn't had pain medication for 24 hours now and seems to be comfortable. When being asked if she wants any she has been turning it down. There is most likely still some pain medication in her system from previously so that may be helping a bit.

Her vital signs are all looking good, normally we have been able to tell by increased pulse and blood pressure when she is in pain, so this looks to be very good right now.

Zach is trying to figure out a way for her to write since she still isn't able to speak. Because her neck brace puts her neck in such a way that her eyes are more on the ceiling he hasn't figured out a solution yet. There are rumors of some type of a foam pen where those with casts can still write so he is looking into this.

Would love to have her be able to communicate more than just via a yes or no nod. She is mouthing words but so far no success in understanding what she is trying to say. After all this time she should have quite a bit to say when she is able to. Am sure if I hadn't spoken in almost 3 weeks everyone would be in dread of when I started to speak and it was all stored up. Everyone would be making a mad dash for the exit to escape. We will see how much she has to share when she can finally talk.

glasses are on


Sorry for the late post today.

Cosima is becoming more awake now. She is lucid and is starting to refuse her pain medication so I would definitely say she is more aware and starting to assert herself. She is also wearing her glasses now throughout the day.

The nursing staff at Kindred has a 6 to 1 patient ratio versus nurse compared to the 2 to 1 we had at New Mexico University Hospital. We were initially concerned about the big difference but so far the level of attention seems to be very sufficient.

Physical Therapy has started - right now it is just basic range of motion. Having very little movement the last few weeks we are pleased that this is starting to help prevent any further muscle atrophy.

The staff also did an ice test in her mouth, not sure what all this entails but it has to do with being able to remove the trach. The optimistic goal is to have her off the trach by the end of the weekend but more realistically it could be another week.

a temporary new home

Cosima has been moved to a different hospital in Albuquerque. Her new home for the next few weeks is Kindred Hospital. This is a LTAC (long term acute care) facility and is step 2 of her recovery plan. We were given 2 choices of LTAC facilities and Kindred is the one we chose.

They were able to move her since her pneumonia seems to be gone and she is no longer running a fever.

Yesterday Cosima seemed to be much more alert and her pain seemed to be under control. She is not talking yet as they will have to teach her how with the trach.

Visiting hours at Kindred are from 10-9 daily. This hospital is a 57 bed facility just 1 exit south of New Mexico University Hospital.

Kindred Hospital - Albuquerque
700 High Street NE
Albuquerque, NM 87102
Phone: (505) 242-4444
Room # 108-2 though this may change

If you would like to send cards please do so to Cosima's attention at the above address.

new accessories

A busy day today for Cosima. Her staples were removed and most of the stitches on her right arm were removed as well. So far the skin graft on her elbow looks good and it is being accepted. In about 5 - 7 days they will remove the sutures.

She received new dressings and bandages. To complete her new accessories a new half cast was put on her wrist and her broken thumb was splinted. After all the activity she got a well deserved rest throughout the rest of the morning and into the early afternoon.

Her temperature remained normal throughout the day. She will continue on the antibiotics for another week. Again there was quite a bit of drainage from her lungs which is a result of her pneumonia.

In order to increase her overall awareness the medical team is working on reducing her level of morphine and the sedatives she has been receiving.

One of the next steps is to see if they can get the neck brace off. This seems to be a source of discomfort and having seen it I would definitely agree as it is quite bulky and looks very uncomfortable especially on her small frame. Zach suggested a large pediatric neck brace as it may improve the position her neck is in and would reduce the pressure on her C7 fractures in her neck. An MRI needs to be done first before this can happen so we will wait for that to be scheduled.

Her physical therapy should start tomorrow as well for her legs and arm.

Haily has been her nurse now for a couple of days and it is wonderful to have the consistency. She was there during the first few days as well and has an amazing bed side manner.

oxygen assistance

Cosima is still breathing on her own during the day. We were hoping this would continue as she was just removed from the ventilator yesterday. During the evening she is still on the ventilator. She is getting 40% oxygen through her trach which is down from 50% as of yesterday. It is just giving her an extra bit of assistance right now.

She is still pretty out of it and not very responsive which is most likely due to the pneumonia. Her temperature has come down to normal ranges so that is a good step.

Preliminary reports on her skin graft show it seems to be taking. We should continue to get further updates on this but so far so good. Her staples are still in her legs and we hope these can be removed soon.

As you can imagine it has been difficult to keep up with all of the communication. We apologize to anyone who has left us a message we haven't returned yet or contacted as quickly as we would have liked too. Contacting us by email is probably the best way to get a quicker response since we are balancing all of this with our busy work schedules. Thanks for your patience.

kicking the vent to the curb

They have removed the ventilator and Cosima is doing well with out! This is very exciting and a huge step. She will still be hooked up to the ventilator again in the evening to help her breathe while she is sleeping. This is a very common way to wean patients off the ventilator so it may be an on again off again process.

Her temperature is still elevated and has come down just a little bit. She is still being given antibiotics for her pneumonia so we aren't out of the woods yet. Yesterday she felt hot and was perspiring. This is still a sign of infection so they are monitoring her very closely right now.

A new central line was installed yesterday afternoon since the doctors felt the auxiliary lines weren't quite sufficient.

Thelma was able to take a break as she has been at the hospital for so much of the time. She was going to church today and I am sure they are looking forward to hearing her in the choir.

Friday's news

Friday morning Cosima had her surgery for the tracheotomy. They weren't able to remove the staples in her leg at this time but they are able to do this procedure in her room at a later time. For most of the morning and early afternoon she was asleep and groggy when she did start to wake up from the anesthesia.

She is now not breathing through her mouth anymore but through a breathing tube attached to her throat. This can take a bit of time to adjust to but after a short while Cosima seemed to adjust to it and become more comfortable.

There is a single tube attached to a "plug" in her neck, just below her esophagus. This bypasses her esophagus and delivers oxygen directly to her air passage way (to her lungs) through the trachea. This device blocks the 'flap' we normally use to control the flow of air into our lungs or fluids/solids into our stomach - it is controlled manually like a switch. She still has a feeding tube through her nose and saliva tube in her mouth to help, but the air is direct now through the trachea. The Doctor was quick to remind us that this is not a permanent operation. She will likely have a scar from the operation, but it will be removed as she becomes more capable to breath on her own. Overall it is supposed to much easier to breath this way and her lungs should not have to work as hard.

When asked if she would be able to breathe on her own without the ventilator the doctor indicated maybe as soon as this weekend they would start to look at this. Initially they will try for shorter intervals of time off the ventilator, since the risk is far lower now and if she is having difficultly she can be immediately be give assistance back with the ventilator without complications since she now has a trach.

Cosima will not be able to talk while connected to the respirator, as this blocks the air passage way and "air pressure" from reaching her throat and therefore there is no air to move or make sound with. This makes sense if you think about it. Our ability to speak and make sounds is heavily dependent upon air pressure. Without air, there is no sound.

It was confirmed yesterday that Cosima has pneumonia. They had tested for it and the tests showed she did have it. She was starting to run a bit of a fever and she is on antibiotics to treat it. Already her fever has come down so the antibiotics seem be working.

3rd benevolent fund

There has been another benevolent fund set up for those in the Los Alamos area - please check on the left hand side for details on how to donate at the branch there or the locations in Santa Fe and White Rock.

Gracia, one of Cosima's friends, has generously commited to donating all class fees she collects from teaching Hatha Yoga in Los Alamos and White Rock to Cosima's Medical Fund. If you are in the area please join her for a class.

tracking well

Cosima is schedule for the tracheotomy this morning. They will also remove the staples on her legs during the surgery as well.

Yesterday Zach said there were quite a few doctors in her room and all said that she was doing well which is good to hear.

Right now they are changing up her pain medications as she is building up a tolerance to some of the ones she has been on. The new ones are longer lasting and she won't have to receive such frequent doses. This will allow her to sleep more and let her body heal naturally.

She has also had her central line in her chest removed since it was primarily being used for a saline drip. A new peripheral line was placed in her left wrist.

All these things may seem small but they do indication she is on the right track and her progress is moving in the right direction.

future care

Yesterday the social worker sat down with Jan, Thelma, and myself to go over potential steps for Cosima's care after being in the Intensive Care Unit. All time frames are very rough estimates and this is just the initial outline for her next steps in her care after the ICU.

UNMH is for trauma patients and once they are stable they are downgraded to another floor of the hospital or moved to another facility. It is currently anticipated she will be at UNMH for another couple of weeks.

Step 2 is Long Term Acute Care, or LTAC, as I will refer to it going forward. This is for patients who still need a very high level of care but are stable and have their scheduled surgeries completed. They handle patients who require extended hospitalization to meet their medical needs. Anticipated time is about 2-3 weeks here.

Step 3 is a Skilled Nursing Facility, called SNF, and this is for non weight bearing patients. At this stage she would need to be breathing on her own and no longer on the ventilator. They would provide range of motion therapy. Estimated time here is about 4-6 weeks.

Step 4 is a Rehabilitative Center. Cosima would go here when she is no longer non-weight bearing. They would provide up to 3 hours a day of Physical Therapy, Occupational Therapy, and Speech Therapy. I do not have an estimate for the time she would spend here. The goal here is for her to be able to be as independent as possible and provide basic care for herself.

After this there would be ongoing physical therapy but we don't have many more details on this yet.

Yesterday we looked at LTAC facilities and chose one we feel would best suit her needs. It is located in Albuquerque a short distance from where she is now. We all felt it was an easy decision to choose the one we did.

Please keep in mind this is a very rough outline and there are many variables but right now this is the initial plan. There will be more to come but wanted to give a brief summary of anticipated next steps.

change of the guards

Zach, Cosima's younger son, arrived yesterday evening. In the ICU visiting hours end at 6 but they also have visitation from 9-11 at night so he was able to see his mom. Cosima was awake when we arrived and was very happy to see him. Much of the time we were there she did sleep after being given some more pain killers but it is always good to see her relaxed. It was nice we had an opportunity to go through some things and chat before I leave this morning.

It is a bit hard to leave her - know it was extremely difficult for Sam to do so but Zach will take excellent care of her as will Thelma and Jan and all of her friends. The internet and email becomes an even better invention right now so we can all be in touch frequently. Oh and did I mention those cell phones - those seem to work out pretty well too.

She is continuing to trend in the right direction. Right now the tracheotomy looks like it will take place on Friday.

post surgery

Sorry for the late post - know several of you were wondering on the outcome but this is the first chance I have had to give an update.

Cosima's surgery took about 2 hours. They just operated on her elbow but did not do the tracheotomy yet. This will be done on Friday as the surgeon wasn't available during her surgery to do it.

We have been told the surgery went well but don't have a ton of information yet as we haven't spoken directly to the hand surgeon. They did a split-thickness skin graft which contains the epidermis with only a portion of the dermis. They didn't have to take a portion of her muscle which is a better outcome. We won't know until Monday if it was successful and it has taken. The skin was taken from her upper thigh.

I have been told she will have to be sure to wear sunscreen diligently on her arm for the next year or so as it will be very sensitive to the sun. I am putting anyone with her while she is outside in charge of making sure she does this.

She was resting for much of the afternoon. The lights were off which was a refreshing change, nothing like florescent lighting shining down on you constantly. The head of the ICU likes the lights on as he thinks the it stimulates the patients so some nurses shut them off and he walks by and turns them on. It is actually a bit amusing. I was almost thinking about buying lamps but somehow don't think they would let those in.

Later on in the day we went to look at long term acute care facilities which is the next step in her recovery. I will post more on this later and go through the next steps. At this time the projection is for her to be at UNM in the ICU for about 1 to 1 1/2 weeks.

in surgery currently

Cosima was taken off to surgery about 10 today. I have now been told the surgery will be about 2 hours and another 1/2 hour if they do the tracheotomy. They would like to do the tracheotomy at the same time so she doesn't have to go back into the operating room again.

The tracheotomy is so they can take the breathing tube out of her mouth. If they leave it in too long it can cause scarring and damage the vocal cords. This will mean Cosima can begin to talk with us when she is ready since she won't have the tube in her mouth. It will also make it easier for her to breath since the tube is shorter. Right now she still needs oxygen. When they take out the tube out of her neck the scarring should be minimal and it will heal quickly.

The doctors and nurses were quick to reassure us it is nothing like what is shown on tv and is a relatively quick procedure.

I will give another update after her surgery.

surgery scheduled

It was a somewhat busy day - busier than we had anticipated. They reinserted an A line into her arm for the hospital staff to receive constant blood pressure readings as the other one failed yesterday evening.

She had several visitors today - Michael Silverdragon, Berta, and Angel (hope I am spelling the names correctly). They were able to spend a bit of time with her. Thelma's pastor from Jemez also came by as well but wasn't able to see her as the doctors were with her at that time.

Another piece of good news is that Thelma was able to get her hearing aids adjusted today though everything suddenly seemed a bit loud afterwards.

Cosima also got a bath (well as close as you can receive while in bed) and am sure that has got to feel better for her. Hey this is a big event while you are in ICU and it takes a bit of time. Hopefully anyone reading this won't have to have this done but if so be happy to know they kick everyone out of the room. All the things you take for granted on a daily basis - will be sure to really enjoy my shower tomorrow morning.

Surgery is scheduled for tomorrow - though I don't have an exact time. This surgery is to repair the wound on her elbow. They will take some skin and muscle from her back area to repair the elbow. The surgeon is very positive about the operation and it is a critical piece to her healing. The estimated time for the surgery is 7 hours. It will take about 5 days to know if the skin graft has been successful or if it is rejected.

I read her some of the journal entries, emails, and comments and she seemed very appreciative of all the thoughts. We have several more to read to her as well when she is ready.

Zach, her younger son, arrives tomorrow evening and am sure it will be very good for Cosima to see him. Have a safe flight!

a good evening

Last evening Cosima had a good night. She was still responsive during the evening visiting hours and was able to nod when I asked her questions. This means she is able to let us know more how she is doing which is good.

I asked her about receiving some visitors today who wanted to stop by and she let me know she wanted them to come. I think this is a very good sign as she is making decisions on what she wants and it will give her a bit of control back. It has to be very difficult for her to be laying here unable to move and not in control of much so making some decisions I believe is good for her.

I also asked about reading her the journal entries, emails, and comments and she wanted to hear those as well so keep them coming. I know the comment section is a bit difficult to figure out so feel free to email and I will read them to her.

My thoughts are that yesterday was a very good calm day and it looks so far today should be the same, especially as she doesn't have to have much done other than replacing her blood pressure line (an A line) in her wrist. She also wants me to touch her forehead and this seems to be reassuring for her right now.

Right now she is listening to her Tibetan music and seems relaxed.

progress on track

The doctors and nurses feel Cosima's progress is on track in relationship to her injuries. We would all like it to much quicker of course but good to hear she on track so far.

They took out the central line yesterday but have reinserted one back in her chest again today. This is so she can continue to receive fluids and pain medication and the lines in her arms can't quite handle all that she needs to receive at this point.

She also has a blood pressure line in her wrist now so they can continually monitor her blood pressure. Her bruised lung is affecting her breathing a bit and is part of the reason she is still on the ventilator. Most of the day she has been pretty sedated so her blood pressure and pulse have been good.

It has been a calm day even with all the activity of line changes, dressing changes, and xrays. The wound on her right arm where the wound vac is has been healing well. Cosima has nodded in response to some of our questions and has said nodded yes when asked if she was comfortable.

Monday morning

Cosima is sedated this morning. Early this morning they tried to remove her ventilator but after about 20 minutes they had to intubate her again. She wasn't able to breathe without the ventilator without difficulty. They will evaluate again tomorrow to see where she is at.

She was a bit anxious last evening as she is becoming more aware but this morning they have her on some different pain medications and she is resting comfortably since she is sedated.

All the emails are appreciated and we enjoy hearing from everyone who is thinking of her.

good friends

This afternoon Cosima's friend Gracia (who was riding with her during the accident) and her mom stopped by for a visit. It was a very welcome visit as Gracia is obviously very close to her. With Gracia's presence and some additional pain medication and a sedative it made a big difference to Cosima and brought a sense of calm that had not been felt for most of the day up until that point.

Cosima is very lucky to have such good friends who are so thoughtful and share her beliefs. Thanks Gracia as your visit helped both Sam and I as well.

If anyone else visits please be sure to sign the journal we got for Cosima. We want to read her the entries when she is awake and then it will also be something for her to have when she leaves the hospital.

starting to move around a bit now

As of right now Cosima is still on the ventilator. They are still working on getting her pain medication at the right dose but still keep her awake. She is now getting oral medication in addition to her IV drip which lasts longer and can be more effective for pain.

Lots of arm movement now and she seems to be more awake. Her wounds continue to heal and her forehead lacerations are almost completely healed.

I am at the hospital now with Sam and will be here for a few days until Zach comes. She seems to be aware when you speak with her and does nod and blink her eyes.

comments welcome

At the bottom of each post is a comments option. If you have anything you would like to share or say to Cosima please add a comment. We will read these comments to her.

still on the ventilator

Quick update on the ventilator. Oxygen helps the healing process and they don't want her to be short on oxygen at all during this time so she is still on the ventilator at least for today. With her ribs being broken it isn't surprising that she is still on the ventilator.

This morning they did a breath test and it needs to measure at least 25 on her inhale for the ventilator to be removed. Her breaths measured 10-15 so she is on the ventilator at least through today. They will do the breath test again tomorrow.

Saturday morning update

Cosima is still on the ventilator right now as she is not fully breathing on her own. They are working on decreasing her dependence and trying to remove it soon. When the pain medication starts to wear off she is definitely more alert.

She had a pretty good sized cut on her forehead and Sam said the nurses pointed out how quickly it has healed and that it is a very good sign. They said she would be healing just as rapidly internally as well.

For those interested I wanted to give more information on what a wound vac is. VAC stands for Vacuum Assisted Closure and is a device is used to facilitate wound healing by converting an open wound to a closed wound. It consists of an evacuation tube embedded in a polyurethane foam dressing. After the foam dressing is placed in the wound bed and sealed by an occlusive dressing, the tube is attached to a vacuum unit. The device removes fluid from the wound. This procedure reduces bacteria in the wound, draws out stagnant toxins and stimulates new blood flow, decreasing the wound healing time dramatically.

This is what was placed on the open wound of her arm and it has been shown to greatly increase healing time and decrease the possibility of infection. The dressings need to be changed much less frequently as well with the wound vac. Medical technology is amazing.

Thanks!


This will have to serve as a thank you card to all the hospital staff until I can sit down and send out proper written ones (sorry to my mom - I really haven't forgotten all the manners you taught me, but for right now I will use netiquette instead of proper notes). The nurses have been very caring and supportive. Our special thanks go out to Amelia the nurse on the night shift. She has been very supportive and so attentive to Cosima. Connie was the first person Sam spoke to when we found out the news and walked him through what was going on with such patience and caring.

All the day shift nurses are wonderful. Haley (hopefully I have spelled her name correctly) was the nurse there at admitting time and has taken excellent care of Cosima. Her bedside manner is terrific and has given Sam and Thelma a ton of support and reassurance. Lauren was also there at admitting and has been taking of her today - thanks for all she has done. Amanda is another day nurse who has been a very calming presence. Judy was the nurse on Weds and Thursday (I think as the days are starting to run together) and took great care of her.

The doctors have all taken the time to explain things to Sam and Thelma. I can only imagine trying to explain medical terminology and all the details when so much needed to be gone through to someone with very little medical knowledge. I try to look some of it up on google (what did we ever do without the internet?!?) and then run it by my mom for verification (she is a nurse as well) after getting it from Sam so hopefully we are somewhat accurate in relating it all back.

All of these caring people have made such a difference and we are thankful they chose the medical profession.

Thanks again for helping make such a hard time that much easier for the family.