feeding tube

Thursday was a challenging day. They needed to reinsert her feeding tube through her nose but Cosima didn't want to have it done as she was wants to have solid foods. Her swallow test showed she wasn't ready so she had to have a feeding tube put back in so she could get nourishment. They might put a feeding tube in through her stomach but this would need to be done at UNMH and it can't be done until next week.

They aren't able to give her the swallow test again for another week as she needs to strengthen her upper esophageal sphincter (UES) muscle before it can be done again.
During the test on Wednesday it showed she was still aspirating the food she was given and the concern is that it could end up in her lungs which would be dangerous.

It took several attempts but they were finally able to get it back in. They did sedate her some for the procedure but it is still very uncomfortable. The rest of they day she was sleeping from the effects of the sedatives.

Also on her Weds trip to UNMH they removed the sutures from her skin graft and took off the cast on her right arm. She was given a removable wrist brace for support.

Getting the feeding tube back in was a major hurdle and we are hoping for a much easier day Friday.